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February 2007

Doctors: Bound by Secrecy? Victims: Bound by Pain!

Adhesions Hooray! The book is complete and has made its debut. The questions and comments are already coming in. First, cheers to all who have given the story a big thumbs up! I'm very thankful for Melissa's courage to allow her mom to "put it out there" for all the world to see! 

Knowing so many others suffer from the painful condition of Adhesion Related Disorder, a book of this nature (in my opinion) is way overdue! Unbelievably, Melissa suffered fourteen years in agonizing pain due to a condition that has been cloaked in silence among the medical world. When we finally uncovered the truth behind her debilitating condition, I became determined of mind that no other little girl suffer as my little girl had suffered. 

Remarkably, when we finally penetrated the infuriating medical fortress that had insisted Melissa must succumb to a life of pain, her condition was corrected in a mere 



Doctors: Bound By Secrecy? Victims: Bound By Pain! lifts the veil of silence from an illness that is widely known among the medical community, yet hardly known to the public at large.

Unfortunately, just like Melissa, victims of adhesion related disorder often spend years being treated for illnesses they do not have (misdiagnosed), and/or being forced to seek out doctor after doctor in an effort to find someone who will listen to them. The most common and insulting thread that remains strong and unbroken among sufferers is the many physicians (even specialists) who quickly sum up the adhesion sufferer as a person who is "depressed;" totally negating the fact that these people are in real pain. 

Doctors: Bound by Secrecy? Victims: Bound by Pain! is a story that, at times, was difficult and painful to write. With each click of the keyboard I was transported back to many painful moments and relived those moments as if they were all happening once again. I knew the writing writing would also bring pain (once again) to Melissa, my husband, sons and youngest daughter--a pain that all of us (especially Melissa) have wanted to put behind us. This is one reason I added some of our humorous incidents into the story, as anyone who has been dealt such a hard blow from life surely needs times of escape. Knowing Melissa would read the book, as told by her mom, I dreaded her reliving the pain all over again, therfore I sprinkled the book with some of the moments that caused us to laugh so hard our sides ached. 

I've been asked if the book was hard to write. Painful, yes. Hard, no. Honestly, the words came fast and furious during most of the writing. When it was all done, I read and re-read. There were many things I wanted to remove from the book, but there was a nudging inside telling me to leave it.

I have a good friend, Mark, whom I admire and trust. I handed him the manuscript and allowed him to be my compass. He spent a few days reading every word, making a list of notes, and then called me up. When I went out to meet with him, I was nervous. It was as if I had handed him my soul and I just knew he was going to rip it apart.

He didn't.

He spoke from his heart, sharing thoughts about how the story caused him to reflect on things in his own life. He was honest, kind and empathetic. Then he told me, "I laughed, I cried, I laughed, I cried....and...I think you need to remove this one portion!"

I took his advice and removed an entire chapter from the book. This man, who knew little about our family, gave me an invaluable gift by his extension of openness, kindness, concern and wisdom. Thanks, Mark.

Though there are passages and chapters in the writing that I (or Melissa) may be judged harshly for, the story is what it is. Take it, read it, sift it, throwing away what you don't like and keeping close to your heart the things that you do. 

© Karen

*Note: Doctors: Bound By Secrecy? Victims: Bound By Pain! can be purchased at this blog or a 

Wrong Number

What is up with people who call you back nowadays when you accidentally dial (rather, punch in) the wrong number?Ant021_3
Gone are the days of innocently making a slip of the finger. Nowadays, you are tracked down and expected to come up with a reason for the error.

A few weeks ago my cell phone rang. When I answered, a young girl said:"You called me?"

I didn't know who she was so I asked, "Who is this?" She answered, "Well, who is this? You called me."

I replied: "No, I didn't call you." She then insisted: "Oh yes you did. Who is this?" I replied, "No, I didn't. Who is this?" She retorted, "If you didn't want to talk, then why did you call me?"

By this time I am thinking that this is some sort of prank, so I replied, "Okay, so I called you. But, nevermind." Puzzled, she replied, "What? What do you mean nevermind?" I answered, "You said I called you, I said I didn't call you, but you inisist that I did call you, so I am agreeing with you. I called you, but, never mind." She sighed loudly into my ear and asked, "Is this Jason's mom?" I said, "Jason who?" She said, "If you're Jason's mom, just say so." I replied, "No, I am not Jason's mom." I heard another long sigh and then she asked, "If you're not Jason's mom, but you called me, then who are you?" Taking cue from her, I breathed a heavy sigh as I smiled, "Right now I'm a woman who wishes she would've never bought a cell phone." She giggled-ever so slightly--"Well, I had a missed call and when you answered I just got SICK. You sounded just like Jason's mom!" I replied, "And I take it that that's a bad thing." She laughed out loud. I continued, "So, you had a missed call; I suppose I must have made made an error and punched in your number--but if I did--I didn't realize it. So, my apologies."

"Oh, no problem," she replied, "I'm just glad you're not Jason's mom!"

Me too.

Doctors: Bound By Secrecy? Victims Bound By Pain!

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  • The information found on this website is to share the personal story of my daughter's trying journey with Adhesion Related Disorder. This website is designed solely to: inform, educate, and shatter the silence that surrounds the illness of adhesions, or ARD (Adhesion Related Disorder). The postings within this site are the opinions of the author and/or guests who post here. No content of this website should be construed as medical advice. This site does not provide medical advice. Please consult your physician for all matters concening physical and mental health. 3/14/07
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