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  • All content by Karen Steward, Copyright ¬© 2007 All Rights Reserved.The information and images on this website may not be reproduced, republished or mirrored on another web page or website.

Adhesions

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September 2007

The Paradoxical Commandments

Photo Sharing and Video Hosting at Photobucket People are illogical, unreasonable, and self-centered. Love them anyway. If you do good, people will accuse you of selfish ulterior motives. Do good anyway. If you are successful, you win false friends and true enemies. Succeed anyway. The good you do today will be forgotten tomorrow. Do good anyway. Honesty and frankness make you vulnerable. Be honest and frank anyway. The biggest men and women with the biggest ideas can be shot down by the smallest men and women with the smallest minds. Think big anyway. People favor underdogs but follow only top dogs. Fight for a few underdogs anyway. What you spend years building may be destroyed overnight. Build anyway. People really need help but may attack you if you do help them. Help people anyway. Give the world the best you have and you'll get kicked in the teeth. Give the world the best you have anyway. © 1968, 2001 Kent M. Keith

Helen Dynda Speaks About Adhesions, As Well As The Book-Doctors: Bound By Secrecy? Victims: Bound By Pain!

Photo Sharing and Video Hosting at Photobucket Flowers to Helen Dynda, a woman who has long fought the battle of adhesion related disorder. Her expressive words in this email to me may be the very words for someone who is in pain; and wondering, "what is wrong with me?" Thanks, Helen! Karen, Your book will help other victims of adhesions to learn the truth about what many "Doctors: Bound by Secrecy" fail to disclose to their patients, who are "Victims: Bound by Pain"... which are caused by any of the following: >Blunt trauma - a seat belt injury cause by a car accident. >Endometriosis >Pelvic Inflammatory Disease (PID) >Peritonitis - following a ruptured appendix >Radiation >Ruptured ovarian cyst >Surgery: Trauma... Ischemia... Foreign bodies... Hemorrhage... Infection Your courage has opened the door for others, who may be experiencing what you and your family have had to endure. Helen

Adhesion Related Disorder. The Blindfold Is Off....For Some, Anyway.

Photo Sharing and Video Hosting at PhotobucketHow is it that countless US physicians, specialists and highly esteemed health centers are silent when it comes to ARD? Many seem to have no knowledge of adhesions, adhesion related disorder, or ARD, as they do NOT recognize the illness in their alphabetical list of diseases and conditions: See Mayo--We Dunno! John Hopkins: At America's Best 2007! I found endometriosis, which included the word "adhesions" within the text, but I did not find adhesions in and of itself as a disease or disorder. (If someone finds it listed, please let me know). However, I DID find someone who knows about adhesions, recognizes the illness and includes it in their alphabetical listing of diseases and disorders: We Know (After perusing their alphabetical list, I think I'll see if they have a doc on hand!) Seems rather strange, doesn't it?

Grapevines Speak. What Do You Need To Hear?

Photo Sharing and Video Hosting at Photobucket It wasn't right. Marvin Gaye got the shaft. He had to hear it through the grapevine: Not much longer would you be mine. Bummer. Now why can't a woman just tell a guy when she's through? She had plans to make him blue with some other guy that she knew. But, he had to hear it through the grapevine. ARRRRG! He's left crying; slobbering out his pain in a song. And even though the grapevine had loudly spoken, he's too dumb to believe it. Bawling like a fool he asks: Do you plan to let me go? For some guy you knew before? Well, waaaaaa! I'm sure she did. Left him. Gone. Adios. Hooking up with some smooth talker who will leave her in a New York minute once he sees some other sweet thing that catches his roving eye. And soon, she'll be left with nothing...... While Marvin's pain, and hit song, pay off. Big time. Oh, sweet revenge. Fast forward. It's time for your next appointment with your doctor. You're in pain, once again. You've completed the tests, blood work, and exam, once again. You already have 4-5 operations under your belt. Literally. The doctor grimaces, rubs his chin in frustration, then says flatly: "Okay, maybe we need to operate again. It's adhesions. We'll schedule you for next week. Will that work for you?" "Uhhhhhhhh......" "Good. Same as last time. We'll do this laparoscopically. Won't open you up if we don't have to....we'll clean them out again...should give you 6 months to a year again...free of pain, hopefully." "Why does this keep happening?" "What?" "This PAIN?! Why can't I get well-once and for all?!" "There's no cure for adhesions. We're doing all we can do." "I just hate to go through another operation!" "Here's your schedule. Get up with the receptionist; she can take it from here." She stares at him. Cold. Hard. Angry. "Hey, celebrate! It's only adhesions!" He walks out. She yanks the two little strings from around her neck, jerks the gown from her body and throws it on the table. Then, the tears fall. She thinks of screaming. Opening the door and yelling at him to get his #@!^%! back in there and explain to her just why he thinks she's a walking science project. Just why can't she get well! Just why SHOULD she be operated on again? Just why, WHY!!! WHY??? But, she does none of it. She throws on her clothes, wipes her eyes, and plods toward the receptionist. Just like a good little girl. That evening she goes to bed, falling into a restless sleep. Marvin Gaye comes to her in her dreams; softly whispers in her ear: I heard it through the grapvine....oh yeah, I heard it through the grapevine. One by one, grapes fall onto her stomach. She's asleep, yet awake, as she watches the grapes covering her belly. The purple stain across her abdomen. Pain. But grapes aren't painful. Why do the grapes hurt? Marvin Gaye whispers softly: I heard it through the grapevine. She wakes. Fully. 2 am. She looks around. No grapes. No Marvin Gaye. Pain. Yes, pain. And she dreads another operation. But, woman that she is, she lies in bed and asks: why did I have that dream? What am I to learn? Soon, she decides that someone knows something that she doesn't know. The grapevine speaks. The grapevine urges. The grapevine warns. The grapevine is there to help. The grapevine is there for a reason. One must only have ears to hear. _______________________________________________________________________________________ My friend, Helen Dynda, has always proclaimed: Knowledge Is Power! Severe and disabling illness demands the engagement of the sufferer and/or the sufferer's family. You must study for yourself. Thanks to the internet, sufferers are no longer alone in their pain and tears. For the person who suffers from adhesion related disorder, a plethora of grapevines are ready and available! Thankfully, there is a large cluster who bind togther, ready to lend a listening ear to the sufferer who is still wandering amid the halls of modern medicine. These clusters cover the globe, willingly providing their contact information. Because they care. Because they've suffered. Because they've been there. Thanks to all who have "gone before" and are now working globally to promote ARD awareness, as well as providing a shoulder to lean on. See: Contacts And to all who are still humming the tune, go ahead-take a break. Give it up for:Marvin

Riding The Medical Merry Go Round.

Photo Sharing and Video Hosting at Photobucket Just like a child who waits for the parent to take him off the merry go round (I've had enough fun, thank you) the person who suffers from adhesions and/or endometriosis often feels trapped in a vicious cycle of pain, medical tests, and no answers. Time passes, pain continues, and the sufferer feels compelled to jump on a new carousel. You muster up your strength, once again, and visit a 'new' doctor-hopes held high that he or she has a new manner in which to rotate the platform. You move from the waiting room and into the examination room as you are ready to step on the platform of a new carousel. For some strange reason, the person who suffers...and suffers...and suffers....always has high expectation that the new doctor will turn them in a different direction; one that will lead them out of their life of misery. Unfortunately, many sufferers learn the hard way that though many may grab the wheel and throw you for a spin, you often end up going in the same direction you've been before. Is the sufferer simply daft? After all, Albert Einstein once said that the definition of insanity is doing the same thing over and over again while expecting a different result. However, the sufferer is forced to cling to hope, thus desperately grasping for a medical thread that surely hangs somewhere across the vast expanse of the universe. It is interesting to note that Dr. Harry Reich (a US physician who recently closed his practice) urges US women who have been on the US medical merry go round to look toward Europe for help. See: ISGE Perhaps Dr. Reich knew exactly where the spin stops.

But, Where Am I?

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A parent can have a lot of explaining to do if they have four children but old family photographs reflect only three. The ousted child, now an aging adult, will be found asking: "How come I'm not in this photo?" The mother gently chides, "Oh, honey! You hadn't yet been born!" The child looks at the back of the photo,"Well, it says here that this was taken in 1946! I know you're my mother, but maybe I need to remind you. I WAS BORN IN 1942!"

The mother grabs the photo to have a look while the questioning child stands by, anxiously awaiting a better explanation.

"Hmmmm," the mother says as her brows furrow in thought, "You must've been at grandma's when this was taken."

The child, visibly upset, grabs a handful of photos and retorts with a smouldering tongue, "I guess I was at grandma's in all of these too!"

Of course, the other siblings (who are happily smiling in each and every photo) may seize this unjust moment as an opportune time to further rib their sibling, joyfully and perhaps unknowingly, pouring salt into the wound:
1. "You're such a whiner!"
2. "When are you going to believe me?! I've told you a thousand times that they found you under a rock."
3. "Pictures don't prove one's existence. You're here, aren't you? What more do you want?"

And so it is for the person who suffers from adhesions. They search for validation, understanding, acknowledgment, and most importantly: existence of their illness! In the big picture of illness: cancer, cystic fibrosis, diabetes, parkinsons, lou gehrig, lupus, endometriosis, multiple sclerosis,
(just to name a few), the adhesion sufferer searches for the "picture" of adhesions.

Not Here

Nope, Not Here

Or Here

September is ARD awareness month. To all who suffer from adhesions (ARD), many hugs are in order. Photo Sharing and Video Hosting at Photobucket

Your fight, your grit and your stamina to continue to stand, are admirable indeed! May God Bless Each And Every One of you!

September 10-16 is also designated as chronic invisible awareness month. See: Rest Ministries To all who suffer from invisible illnesses, may you be blessed with strength, love, and determination. Hugs to you as well. Photo Sharing and Video Hosting at Photobucket
In recognition of ARD awareness month, we are sending out free pins Photo Sharing and Video Hosting at Photobucket to anyone who would like one. Please send a SASE (self addressed stamped envelope) with 1 US postage stamp attached to:

E.L.M. Publishing, Inc.
ARD Awareness Free Pin Event
PO BOX 787
Weatherford Texas 76086

*Note: One single-stamped SASE is required for each pin that is requested.

For those outside the US, please contact Karen @ kann@charter.net

Doctors: Bound By Secrecy? Victims Bound By Pain!

ARD Awareness Pin

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DISCLAIMER

  • The information found on this website is to share the personal story of my daughter's trying journey with Adhesion Related Disorder. This website is designed solely to: inform, educate, and shatter the silence that surrounds the illness of adhesions, or ARD (Adhesion Related Disorder). The postings within this site are the opinions of the author and/or guests who post here. No content of this website should be construed as medical advice. This site does not provide medical advice. Please consult your physician for all matters concening physical and mental health. 3/14/07
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